Thursday, December 31, 2015

The dreaded cochlear implant (CI) topic

We've known I've been half deaf (little 'd' for physical) for a long time now, and the time I've been deaf has been even longer than we've known about it. In the time since we've learned about it, there has been one question that people ask that has come to be quite painful. And that is the question of whether or not I have heard of cochlear implants, or CIs, or why I haven't decided to get them yet.
         
I have had this question asked of me from many people, most of whom I had only just told I was half deaf. And most people who are deaf (only physically deaf), Deaf (physically and culturally Deaf), or hard of hearing HATE this question. It's not a matter of some liking or disliking the question, it's more a matter of whether they loathe, despise, or hate the question. And here's a short list of why we hate it:

1.     In most cases when this question is asked, my health choices are none of your concern. If you are not family, or are not a very close friend, it is simply none of your business. If I decide I need a CI, that is entirely up to me, not you. I do not have to explain myself to you, nor do I need to convince you that I don't need one. You're the one trying to convince me to buy a $10,000 device that they surgically put inside my skull.

2.     By offering the idea of a surgery to "fix" our deafness, you are implying that we are not functional without it. And we most certainly are. Otherwise, we wouldn't be having this conversation, would we? It's actually quite hurtful, because it makes us feel like we're verging on being non-human.

3.     Just as I do not offer you a suggestion for you to have a major surgical procedure on a topic about which I know nothing, you should not be offering suggestions to me about life threatening procedures about which you know nothing yourself. Do you even know how much it costs (and no cheating by looking at the first reason on this list)? And do you know the risks?

4.     I've been physically deaf for my entire life. Do you think I have not heard about this procedure from my ENTs, audiologists, well-meaning-nosy friends, family, and complete strangers? If I wanted it, don't you think I'd have tried to get it?

5.     Do you realize that the procedure requires drilling one hole completely through my skull and putting wires into my ear to run an electric current into my cochlea, and then drilling another hole halfway through my skull wall to put in a processor? Seriously, do you have a death wish for me?

Image from : 9GAG.com





Wednesday, December 30, 2015

Two worlds, two perspectives

           It's confusing, being me. I'm stuck between two worlds, well, four really, but for here we'll deal with two of them. One is a world which hears and loves sound, and heaven help anyone who gets between a hearing person and their music. The other is the Deaf world, which has varying levels of access to sound, and enjoys the quiet of their Deaf or limited sound world. I am stuck between the two.
I was born half deaf (small "d" for physical deafness), only one ear hearing. My family is hearing and cannot imagine a life of silence. I grew up speaking and, for the most part, appearing to hear as well as everyone else. But understanding what is said has always been hard. However, there has always been the unspoken expectation that I behave like I hear, and keep my deafness secret.
Then I met Ms. J. (name concealed for privacy), an ASL interpreter. She encouraged me to learn ASL, and to interact with the Deaf community. So I took up ASL at my local community college and the Deaf world was burst upon me. I was accepted, my deafness wasn't a dirty little secret that I had to hide, it wasn't something that made me inferior. I wasn't broken, just different. My deafness was shown to be an undeniable part of me that I could treasure, instead of hiding.
And therein lies the tension. I'm not broken, but everyone thinks I am. I'm not to be pitied, but everyone does. I could just as easily pity you for living in a world more saturated with sound than a wet sponge, as you can pity me for not hearing what you hear.
The truth is, the more I accept my deafness, the more I like it. I like my cozy quiet. I like not being bombarded with sound. It's me, unaltered, unashamed.
But the fact remains, most people I know hear and don't sign. I love them and I want to connect with them, so I wear hearing aids to connect with them more easily. But I don't need hearing aids. The hearing aids don't make me more equal. They simply bridge the gap between me and you.
Yesterday, I went to the audiologist, and they told me I need to wear my hearing aids more to get used to all the background noise. But I don't want the background noise. I don't need to hear all that. She thinks I'm broken, and she needs to fix me so I can be that elusive thing they call "normal." But I'm not broken; I'm different. I'm not looking for a fix; I'm looking for a bridge between me and others, like a man from Japan coming to America with a Japanese-English dictionary in hand. He is not broken, nor is he deficient. He is simply different. My hearing aids are my dictionary for your speech, and sometimes, even then, they don't have the words you say because they do not change me to be like you; they simply bridge the gap.
But because my loved ones struggle to bridge that gap themselves, often not knowing how to do it, I wear my hearing aids to become that bridge. But it costs me.
How does it cost me? Well, monetarily, hearing aids can cost as much as a used car. They are very expensive. But more than that, I have to forego my own desire not to speak and my own wish to live in quiet, to speak with my loved ones. It takes effort, especially in crowds, to understand what is said. It is, quite literally, exhausting. And in the process, I feel like I have to deny myself, my deafness, which is an intrinsic and precious part of me, to communicate in the culture and norms of my hearing family and friends.
And this causes a great tension within me, as I walk the line between two radically different, and often directly opposing cultures. To be honest, there are days where I loathe the sounds that are all around me, longing for total silence, and yet, there are other days where I long to wrap myself in the cloak of normalcy, to be like my loved ones. Yet neither is something I can fully be, and I walk each day with that inner tension, pulling me towards two different worlds.


Saturday, December 26, 2015

Open letter to hearing friends and family

Dear family and friends,
            This last Christmas, I'm sure you all noticed me and Mum signing. And some of you told me to stop signing. Some of you seemed quite frustrated with me, and what I was missing, or my odd behavior. There is something you need to know:
            I am going Deaf. In the past, I could pass off as hearing as well as you. I can no longer do that. I am completely Deaf on my left side. Nothing gets through that side. My hearing aid on that side doesn't even help that ear, but only acts as a radio to send the sound over to my right side. And now, my right side is also mildly hard of hearing.
            I am beyond tired of pretending everything is okay when I walk into a family or public event. And I will never stop signing. I am going Deaf, and when I become fully Deaf that will be my main mode of communication. It makes you uncomfortable? Put yourself in my shoes; missing over half of what you say and being left out of everything is misery. It turns every family and social event into a nightmare.
            When I sign, the world opens up to me. I can understand, I can communicate, I can connect. I am no longer cut off from the people I love. When you tell me not to sign, you place me in a cage, where the words I can't understand make the bars of that cage. Only random words are discernible from the myriad of sounds surrounding me. I can't leave without being rude, and yet you deny me the only way I have equal access to the conversation. You laugh, and I ask what happens, and you tell me that you'll tell me later, though we both know that that later will never come. You talk about plans and events, things that happened in your life, but I never know, because I can't hear you.
            And I can't take it any more. Your words fly around me, but mean nothing to me. I know I'm missing out, and it will only get worse as time goes by. I try to express myself in body language, because I'm trying to break out of the wordless sound I'm in, and you tell me to stop being so childish.
            How can I break free? You won't let me sign, you won't accept my body language that I use to express myself when words fail, and thus I am cut off from my own family and friends.
 Don't you love me enough to face a little discomfort so I can be in your world? Every day is discomfort for me. A fear of a stranger yelling at me because I don't understand; nodding and smiling when people are talking because everyone else is, though I have no idea what they're saying; seeing people laugh, and knowing I miss the punch line and missing feeling the sweet comradeship there is in laughing together; having a store clerk ask me a question, and having to stare at her with an uncomprehending smile without a clue of what she's saying. Can't you take the time for a few hours to face discomfort so I can know what is going on in your lives? When I ask mum to interpret for me so I don't have to rely on my weakest sense, can't you realize that I ask because I care what you have to say? And when I can't hear at all, can't you realize that I sign because I don't want to be alone, and not because I don't want to exclude you? That I sign because your speech is excluding me, and I don't want to be alone any more than you do?
I come to events because I love you, though it takes all my effort to understand. If it were just me, I would stay home and read a book, or blast music that is loud enough for me to hear. Honestly, every event where I have to hear is exhaustion. Can't you love me back by trying to help me instead of hindering me? All you do is complain about what I'm doing. Is it really loving of you to pretend everything is ok and to make no effort to help me, but to hinder every attempt I make at trying to hear you? If you will not help me, then what can I do?

I can no longer pretend. I am going Deaf. I struggle to hear you. If you will not help me hear you, then I will stop trying to hear you, because if it is not important enough for you to help me understand, then it is no longer important enough for me to waste my energy on it. If I cannot sign, if you will not write out difficult words that you've said, if you will not accept that my loud body language makes up for what I cannot seem to express in the sound I am slowly losing, then I will no longer try to come to your events, for there is no purpose for me to come. It is little better than seeing an old movie of you with the sound almost muted. I love you, but I cannot pretend any more that I can fully hear.
Sincerely in CHRIST,
Kiwi

Saturday, October 10, 2015

Real talks: Isolation

Did you know that being Deaf or HOH can feel really, really lonely?

I was born completely deaf (physical, not cultural) on my left side. I've never known anything different. To me, that was just life. I thought everyone had one quite ear and one loud (read that as hearing) ear. The concept of deafness was not really introduced to me.

In private school through pre-school, kindergarten, and first grade, I really struggled, and my teachers were actually going to hold me back because of how much I struggled. Friendships didn't really happen there, either, so that was also missing. My grandmother, GOD bless that wonderful woman, picked up that burden and homeschooled me. She gave me the best education I could have ever had. I don't think anyone could have given me a better education. Still, she didn't know I was deaf on one side. She and Mum suspected something was up, but had nothing to really go on.

We found out when I was 9 that I'm deaf on one side. I've told the story of how we found out HERE.

After we found out I that I'm partially deaf, Mum found a hearing gal at church who knew some sign language and asked her to teach us. Oh, so bad...that was horrible. We met once a week, with basically only vocabulary words, had only two other students besides Mum and I, we never met any Deaf, and learned nothing about Deaf culture. THAT didn't last long. We gave up on ASL after that. She was not a good teacher.

About six years ago, my hearing on my good side began to gradually decline. It took us the past six years to see this decline, and we don't yet know why I have it. (I really need to get a hold of a Neuro-otologist, but that means I have to use a phone ...*cringes*) It's a slow decline, but it's there. My upper range on my right side is now going, and if I'm anything like my mother and grandparents, this will likely be a steady decline for the rest of my life.

I started learning sign language last year, and I was hooked. However, I'm the only one in my family who signs much. Mum knows a little, but it's not the same as having someone who practices a lot.

So now I really cannot hear much in crowds, and am still gaining proficiency in ASL. I have no complete language to use in public settings where I'm not missing something. This is a really big disadvantage at church, because people don't understand what deafness is, other than the medical side of it. And sometimes, not even that. Trying to communicate at church is hard, and it's even harder when people speak quietly, or even just stop talking to you because it's too difficult for them. I tend, now, to gravitate towards louder people in church, but even then, I'm still missing out.

So, in terms of a social life, I have almost no friends, and any friends I do make tend to drift away, because it's so stressful to try to communicate. I feel so lonely, so very much. I wonder if this is how other partially Deaf people feel.  

Monday, June 15, 2015

Graduation Parties - the BANE of every Hard of Hearing person's existence

So, recently, we had a graduation party for a cousin of mine, and I attended said party. Now, I love my family, but I did not want to go. However, it's a graduation for a close family member, so I'm obliged to go to support them.

Now, a party for everyone else is a fun social time. For a HOH person, it's just another reminder of what we're missing out on. Someone talks to you, you sign and voice back, and they look at you like you've just announced that you have a highly contagious disease, or like they've discovered that you're a blithering idiot, and they walk away. That or you become the "special" family member that everyone is asking questions from; which, I suppose is ok, if it's about Deaf culture, but for a Hard of Hearing Introvert, well, misery ensues.

What makes it miserable? Well, as my pastor always says, "I'm glad you asked."

The first misery is that it's just too loud. A HOH person needs to have everything else quiet or else the words just blur into into the background, with occasional words or phrases, and if you're lucky, complete sentences, standing out from the background of incomprehensible words. Everything sounds like rocks in a grinder, or like a stone mortar and pestle being used. Even worse if there's background music, which there was in different parts of the house.

Upload.wikimedia.org,. N.p., 2015. Web. 16 June 2015.

Then, someone introduces themselves. You say hi, and sign "nice to meet you" while voicing, so that they know you're Deaf or HOH. If you're lucky they sign back, or at least continue talking with you. If not, they look at you like you've just become beneath their dignity, or at least not worth the effort of talking with, and they walk away.

Now, if you find someone who signs, it's delightful. Even if they're newer, or it's been a long time, they are generally excited to sign with you, and it can be so much fun. I got to sign with a young mother and she not only enjoyed the chat, but she explained why I was signing to her children, using it as a teaching experience. She was teaching them about Deaf/HOH and was helping them understand me. It was very cool!

However, sometimes, hearing people are really enthusiastic to meet you. VERY enthusiastic. Especially if you can speak. I think I got grilled on my deafness, knowledge of Deaf culture and ASL for at least half an hour by an older gentleman. Let me tell you, it was frustrating and yet kinda cool at the same time. Weird how those two can go hand in hand sometimes. It was cool that he wanted to know about Deaf culture, but he was so annoyingly intent on learning it that I couldn't even talk with anyone else. I felt like I was being interrogated. At one point, it wasn't just one guy, it was four or five people, and the rest of the time there were people coming in and out listening and asking questions. Oh my word, so exhausting. Especially when you're Deaf/HOH, and introverted (the definition of introverted here being that I recharge when I'm worn out by doing solo activities, generally creative things, while being social drains me like you wouldn't believe.).

Oh, and pet peeve; DON'T LOOK DOWN WHEN YOU ARE TALKING TO ME, OR WHEN I AM TALKING TO YOU! Just, don't. If it's when you're talking and I'm trying to listen, I can't lip read you, and probably can't hear you if your face has something between me and you. And if it's when I'm talking, I think you're not listening. In Deaf culture, it's EXTREMELY rude to look away when someone is talking, and continue looking away. I don't know about glancing away for half a second if  movement catches your eye, but I know that for me, I get frustrated when I don't see your eyes and mouth when I'm talking with you. Just...look me in the eye, PLEASE.

In short, if you have a HOH friend for family member, and they want to skip your party, let them. PLEASE, have mercy on them. It is not fun. 


Thursday, June 11, 2015

Glory To GOD

I hate being hard of hearing sometimes. I'll just say that straight up. I'm tired of struggling to hear people, I'm tired of having to explain, and I'm just tired of trying to hear. It's truly exhausting. Am I ashamed of being hard of hearing? Well, no. But I'm just plain tired of the struggle. It gets old.

But look at these verses:

Psalm 139:13-16;
 "For YOU formed my inward parts;
YOU wove me in my mother’s womb.14  I will give thanks to YOU, for I am fearfully and wonderfully made;
Wonderful are YOUR works,
And my soul knows it very well.
15 My frame was not hidden from YOU,
When I was made in secret,
And skillfully wrought in the depths of the earth;16 
YOUR eyes have seen my unformed substance;
And in YOUR book were all written
The days that were ordained for me,
When as yet there was not one of them.(NASB)"

John 9:1-3; "As HE passed by, HE saw a man blind from birth. And HIS disciples asked HIM, “Rabbi, who sinned, this man or his parents, that he would be born blind? JESUS answered, It was neither that this man sinned, nor his parents; but it was so that the works of GOD might be displayed in him.(NASB)"

1 Corinthians 1:26-28; "For consider your calling, brethren, that there were not many wise according to the flesh, not many mighty, not many noble; 27 but GOD has chosen the foolish things of the world to shame the wise, and GOD has chosen the weak things of the world to shame the things which are strong,28 and the base things of the world and the despised GOD has chosen, the things that are not, so that HE may nullify the things that are. (NASB)"



2 Corinthians 12:9; " But HE said to me, “MY grace is sufficient for you, for MY power is
made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of CHRIST may rest upon me."
~~~
Did you catch that? HE MADE ME. This is not a deistic view of human creation, where GOD set the world in motion and human birth is just a common natural process. HE MADE ME. HE FORMED me. I was MADE this way with a purpose. I was "skillfully wrought." Not a mistake, not an accident, but created purposefully by a perfect GOD.

Why was I made this way?  It was "so that the works of GOD might be displayed" in me. Because HE chose me to shame the strong and to nullify the things that are by displaying HIS glory through me. My deafness is not about a mistake; it's about a divine and holy purpose set in motion to glorify GOD.

Does this mean that GOD did this solely for my good, like in Jeremiah 29:11? ("For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope." ESV) No, because that was a promise to the Israelites in the Sinaitic covenant. That promise is not valid for Christians. JESUS said in John 16:33b, "In the world you will have tribulation...(ESV)" Not might, WILL. So this is not about GOD doing something for me to make my life easier. Believe me, it's not easier.

This is solely for the glory of GOD, so that what HE does through me can only be contributed to HIM, for HIS glory and HIS honor. HE made me hard of hearing so that when I serve HIM and others see, they will realize and understand that it is not through my hearing, my ability that I do things. It is so that they realize that it is GOD who is working, and not me, and give glory, honor and praise to HIM. I am Deaf/HOH solely for the glory of GOD, and I am thankful.

Why am I thankful? Because my struggles will not be wasted in meaningless despair. They will be used to glorify GOD and honor HIM. So I am not cursed with a disability, but blessed with an opportunity to glorify GOD, even though it is hard.

Friday, February 27, 2015

Trouble with Hearing People on Singing

So, I'm known at my college for singing, pretty much anywhere I go. It's just what I do. I do it to relax, I do it for fun, (I do it to show off, naughty me), and I do it because of the awesome acoustics the buildings have.  It's just something that I've done for years. The staff actually seem to enjoy it and it's fun.

The trouble comes in when people don't believe me when I say I am partially Deaf. They think I'm kidding. They don't understand that I will probably be able to hear myself longer than I will be able to hear them, and as I long as I can hear my own voice echoing through my bones into my ears, I will probably be able to still sing pretty well.

Now, the actual singing is pretty easy. The trouble comes in when someone introduces me to another person, or someone approaches me, and I can't hear them. It can get a little awkward.

Here's a perfect example:
Lady: "This is Kiwi. She has an amazing voice!" {Not my words, her words.]
Gent: "Oh, wow! Cool! Wejfdj.....[I can't understand him]."
Me: "Um, could you speak up? I'm half deaf."
Gent: "hahaha...Right!"
Me: "No...I'm literally..half deaf."
Gent: "Oh...." [He looks away and awkwardly ends the conversation.}

This actually isn't too uncommon. I say I'm half deaf or I can't hear them, and they think I'm joking. For me, this generally isn't too awkward unless I can't get them to speak up. However, for hearing people, this just seems to be a major conversation stopper. It's kind of like:
"Hey, I'm Deaf! I can't hear you! Please speak up!"
"Oh...hey...Deaf. ok. Um, oh, look at the time! I gotta go."

Why does being Deaf have to end a conversation? I can still hear a lot of things, I just need you to speak up. Don't walk away. This isn't awkward unless you make it be. I guess it just gets to me. It feels like, a minute ago I was just another gal who could apparently sing, and now it's as if I'm not even worth the effort to simply raise your voice and repeat yourself. I feel snubbed.

Thursday, January 15, 2015

How to get the attention of the Deaf without startling them

One of the big questions people have when they first meet a Deaf person is, how do you get their attention if they're not looking at you? With hearing people you can just clear your throat and they'll look up. But with a Deaf you could literally shout and they'll just keep doing what they were doing. They can't hear you, so how do you get their attention?

Well, what you don't do is you don't toss something at the back of their head to get their attention. No. Definitely don't do that. And don't run and suddenly grab them, because you might scare them, and you might get a very bad reaction. If someone ran up to me and grabbed me, I would probably shriek in fear and probably try to beat them off with the nearest thing I could reach. Definitely not a good way to get their attention. 

So, how DO you get a Deaf's attention? Well, here's how: 

If you're in front of them, and they're looking down, you put your hand just into their range of vision and gently wave up and down. Not right in front of their eyes, mind you. Just just right in their peripheral vision where they can catch the motion. So, say they're reading, you put your hand to the side of their book and waggle it up and down. You don't cover what they're doing, but you're getting their attention. 

If you're behind them, you gently come up and tap their shoulder twice. Twice is important, because one tap they'll think is just a bump, and three or more times signals that there's something urgent that needs their attention now, like a fire.

If you're in a crowded room, you either wave across the room, high enough for them to see, or you ask someone near them to tap them twice and point to you. 

Basically, keep calm and don't startle them.  

Wednesday, January 14, 2015

Computers and those Blasted pop-up ads

Most people know the irritation of having multiple tabs open on the computer, and suddenly, something starts playing on one. Then you have to start clicking through your tabs, going, nope, not that one. Nope. Nope. Nope. OH! THERE! BYEEE!

Now, when you can't hear very well on one side, or can't hear at all one side, you don't always know it's actually the computer. This is because without having two ears that hear well, you can't pinpoint very well where the sound comes from. If it's loud enough and a constant sound, you can possibly find it by wagging your head back and forth, using how loud it is in certain directions to help you find out where it is. (Louder....louder...lou...no, no, quieter...back that way. Louder...louder...louder...THERE it is.) This can actually take a while. But what if an advertisement pops up and it's not a sound you can easily follow? Well, basically, you gotta search the house to make sure it's not the computer, and then come back to the computer and smack yourself in the head for not figuring it out sooner. 

Technology is definitely interesting when you can only hear part of it. I will freely admit that.

Tuesday, January 13, 2015

"WHAT? I CAN'T HEAR YOU!" (story)

The story of how we discovered I was unilaterally Deaf was actually pretty funny. I was with my family at Church. During a quiet pause in the service I guess I was misbehaving or something, so Mum leaned over to whisper something into my Deaf ear, and I piped up in my high-pitched , lil' 9 year old voice and hollered ,"WHAT? I can't hear you!"...Did I mention that the room was silent at that moment? Oh, yes, and Mum wanted to sink right through the floor.

TADA! There you go! There's why I did things a little differently! I was unilaterally Deaf! Still am, now that I think about it.

Anyhow, it was actually pretty funny. You see, when I was a lil' gal, they didn't do single ear hearing tests. They tested both ears at the same time. Back then I had really good hearing in my right ear, so I just slipped under the radar. Mum and my grandmother suspected hearing loss, but no one really thought to consider that I could be Deaf in only one ear. It's not something most folks consider. Most people think that the only options are profound Deafness (stone Deaf), Hard of Hearing in both ears, or just hearing. So we didn't figure out that I was Deaf on one side until I was 9.



Monday, January 12, 2015

The Invisible Difference

When you're unilaterally Deaf,  sometimes you can get some really odd thoughts about your Deaf ear. In my case, sometimes I look at my Deaf ear and think,  "Why do we even HAVE that ear?" It's kinda like a disco ball in a car. It looks nice, but really, it serves no legitimate purpose other than something to hang stuff from, or to keep my sunglasses from falling off my face.
Maybe I could use it for party gags. See who can shout loud enough to make me flinch. Winner gets coffee. I'd win. every. single. time.

But in all seriousness, though, there are difficulties to being Hard of Hearing or Deaf. You see, you can't tell when someone's Deaf or Hard of Hearing just by looking at them. We don't have signs that say we can't hear, and there's no outward physical difference between us and other people. This can make it difficult at times because sometimes people don't believe you that you're Deaf or Hard of Hearing. This can lead to some stressful situations, because people think you're lying to get attention, or to pull a prank. Sometimes people say things like, "Well, you don't look Deaf," or "You don't look Hard of Hearing." Well, no, we don't...we're still human and that doesn't change with whether or not we hear.

This is especially true for post-lingual Deaf or Hard of Hearing. Post lingual means that you became Deaf or Hard of Hearing after you had learned how to speak. You see, not all Deaf or Hard of Hearing were born Deaf or Hard of Hearing, but instead, become so later in life. The clearer your speech, the less likely you are to be believed about your being Deaf or Hard of Hearing.

I grew up with kids constantly asking me, "Are you really Deaf in one ear?  Can you really not hear out of it?" And, oh, I so badly wanted to say, "No, I lied. I just wanted you to keep pestering me about whether or not I was Deaf in that ear." Even as an adult, when I tell people that I'm Deaf in one ear, I get people who doubt me. That's actually part of the reason why I got hearing aids (the other part being that they are, actually, quite useful for conversations, if you hadn't guessed that). If you take a hearing aid out of your ear and show it to them, most people will be convinced that you're not lying. It can get old, and for the person who really isn't lying, it can be very stressful.

So if you come across someone who says they're Deaf or Hard of Hearing, please do them the courtesy of believing them. Most people who say they can't hear you aren't lying and your believing them will be a wonderful blessing.


Sunday, January 11, 2015

Unilateral Deafness vs. Snoring

I'm unilaterally Deaf. It means that one of my ears works about as well as a politician's promise. You could SHOUT in that ear and it wouldn't hurt a bit. It might stink if you have bad breath...but it wouldn't hurt that ear.

Now, this has some advantages. One of them is slumber  parties. If you can hear, you probably know what it's like to discover at a sleepover that this awesome friend of yours actually snores. And it's not a quiet snore. No, it's more like a grizzly-bear-with-a-cold type of snoring. What do you do?

For most people, it's generally earplugs, a pillow on top of your head, or a sleepless night. For the unilaterally Deaf, heehee, we just roll over onto our good side, press that good ear into the pillow, and the snoring either fades into the background, or we simply can't hear it. Nice, huh? Of course, if WE snore, our friends generally aren't as lucky.

Saturday, January 10, 2015

What is Deaf or Hard of Hearing on an audiogram? Pt. 2. Hz

Now, the second part of your audiogram is the Hz part, which stands for Hertz, which you should find along the top or bottom of your audiogram. Along side the Hz, you might find the word "frequency." This refers to pitch, and is how high or low a pitch is. Last time I briefly said that the lower a Hz number is, the lower pitch, while the higher a Hz number is, the higher the pitch. These numbers/sounds on the graph are arranged lowest to highest, from left to right, like a piano.

In case you don't remember the audiogram from last time:


Now, this audiogram is different from mine on the hertz scale in that it's slightly longer than mine. The one my tests are done on only goes down to slightly below 250Hz, while this one goes down to about 75Hz, and mine are only tested slightly above 8000Hz, while this one goes probably up to 16000Hz. However, the concept is still the same.

What might surprise you, is that the frequencies audiologists test you on are actually based on musical notes. Here's an actual online program from The University of New South Wales (it's in Australia, for those of you who aren't familiar with geography) which actually converts Hertz to music notes. Hz to Music notes

I've gone ahead and made a list of the ones on this test their corresponding notes to save you the time.
75Hz = Approximately D2 (second D below middle C)
250Hz=Approximately D3 (first D below middle C)
500Hz=Approximately B4 (B just after middle C)
1000Hz=Approximately B5 (B next octave up from middle C)
2000Hz=Approximately B6 (B two octaves above middle C)
4000Hz=Approximately B7 (B three octaves above middle C)
8000HZ=Approximately B8 (B four octaves above middle C)


Now, for the musically challenged, here's an easier list:

This is from the Northeast Deaf and Hard of Hearing Services in New Hampshire (see Bibliography.) Sorry it's so juvenile looking. It's the only thing I could find after multiple searches. Not wholly scientific, but it's to help give you an idea of what sounds are at what frequencies.

Now, an average audiogram for a hearing person would look something like this:

Now, ignoring the symbols, the different colors stand for different ears. To understand this audiogram, you'd look at the Hz, or frequency, and then match it to the dB where the circle is. That is the indication of the quietest you can hear at the pitch. So this person can hear 250Hz at 0dB in one ear, and 250Hz at about 5dB in the other ear. That means they can hear really quiet low sounds. If you use that same method across the board, you'll have a pretty good idea of what your hearing test is saying.

Cheers!

References

Babyhearing.org, (2015). [online] Available at: http://www.babyhearing.org/images/HearingAmp/HearLoss/normal.gif [Accessed 9 Jan. 2015].
Hearinglink.org, (2015). [online] Available at: http://www.hearinglink.org/image/audiograms---general-use/Audiogram-800.jpg [Accessed 9 Jan. 2015].
Nhdeafhhed.org, (2015). [online] Available at: http://www.nhdeafhhed.org/images/M_images/07_audiogram.gif [Accessed 9 Jan. 2015].




Friday, January 9, 2015

What is Deaf or Hard of Hearing on an audiogram? Pt. 1. dB

If you're not Hard of Hearing (HOH) or Deaf, you might be wondering, what qualifies as Deaf or Hard of Hearing? Well, first, you need to know how hearing is measured.

Here is a very basic audiogram that's a bit simpler than the ones Audiologists use:

So, my audiogram from MY doctor is a little bit different. It only tests hearing levels as low as 120dBHL, and the normal hearing range from my audiologists is slightly larger.

To start understanding your test, you need to understand a few terms. On the left or right side of most audiograms you see dBHL, which stands for decibels hearing level. Most people just use dB, which stands for decibels. Decibels here is the level of intensity, or loudness that you need to have in order to hear a sound. On the top or bottom of the audiogram is Hz, which stands for hertz, or frequency. Without getting into technical stuff that is beyond a non-audiologist  like me, the lower the Hz number is, the lower pitch, while the higher the Hz number is, the higher the pitch. These numbers/sounds on the graph are arranged lowest to highest, from left to right, like a piano. 

Anyhow, this graph is what an audiologist gives you after your hearing test. Now your average hearing person's range falls between -10dBs (the very best) to about 20dB or 25dBs (bordering mild hearing loss. The quietest thing you can hear is from almost total silence to a whisper. To compare it to an everyday sound, 20dB is rustling leaves. Your hearing is excellent, and you are fully hearing. 

Just below that normal hearing range, from about 25dB to 40dB is mild hearing loss. This means that you can't hear really soft sounds, or even plain old soft sounds. These numbers are the quietest things you can hear, so someone whispering to you is probably wasting their time. At 30dB you can hear a whisper at about 5 feet in a quiet environment, and probably not many things quieter. You likely have trouble hearing in noisy environments or group settings, though. 

If your quietest levels are from 40dB to 70dB you have moderate to severe hearing loss. You can't hear soft or moderately loud sounds, and understanding speech with background noise is very difficult. Moderate rainfall, which is at about 50dB, is very quiet for you, and daily house noises are starting to really to fade into the background. 

Having your quietest dB level fall between  70dB to 90dB means that your hearing falls under the category of severe hearing loss. People speaking to you need to raise their voices, and group conversation is nearly impossible, if not thoroughly impossible. The quietest noises you can probably hear are heavy traffic sounds (78dB), a router (85dB-110dB), a food blender (88dB), other types of loud machinery sounds, or very loud dance halls/concerts.

90dB to 110dB is profoundly Deaf. Some very loud sounds are audible, but hearing aids are necessary to hear any basic speech, and even then, they are not very likely to make much of a difference. Anything below 90dB is profound deafness, and you likely hear nothing beyond heavy machinery. 

If you are losing your hearing, don't worry! It'll be ok! The Deaf community has lived without sound for centuries, and they thrive as well as everyone else! In fact, they might be better off,  not having to hear swearing, cat calls, car horns, microphone feedback, or just anything of the overwhelming soup of sound we live in. 

Tomorrow we'll deal with the frequency (hertz) part of your audiogram. 

Bibliography:

Website:
CHSL.ORG
How Loud is It?
In-text: (Chsl.org, 2015)
Bibliography: Chsl.org, (2015). How Loud is It?. [online] Available at: http://www.chsl.org/soundchart.php [Accessed 9 Jan. 2015].


Website
HEARINGLINK.ORG
In-text: (Hearinglink.org, 2015)
Bibliography: Hearinglink.org, (2015). [online] Available at: http://www.hearinglink.org/image/audiograms---general-use/Audiogram-800.jpg [Accessed 9 Jan. 2015].

And information from my own personal audiograms.

Thursday, January 8, 2015

HALLO PEOPLES

I am hard of hearing. Let that be said right off the bat. I'm profoundly deaf in one ear (90dbs.), and I'm probably losing more hearing in my other ear. Sorta off-kilter hearing. This blog is to record the oddities of hearing loss and deafness (two different things), and share useful facts and information about living in a VERY quiet world.

Hearing loss runs in my family, with early hearing loss affecting my mum and my mum's parents. And I, lil' Kiwi, was born off-kilter. Wooo! We didn't discover MY deafness until I was 9. Woooo... yeah.

Did you know that if you're deaf in one ear, you have no sound direction? So someone calls you from one direction, you'll probably look somewhere else. I've actually consistently answered the question of the wrong person when I was in a conversation with my hearing aids out. There's a reason why people like me in Marco Polo; I never catch anyone. Kinda had to give up on that.

P.S. Tomorrow how to find where your hearing levels fall on an audiogram, in case you can't read yours.